Appt with Nephro

Have an appt with my Nephro on Thursday. Wish me luck! Hope it is all good news!

Blood tests

Well these were probably the worse so far in my life.
BUN - 29 high
Creatinine Serum - 2.69 low
GFR - 20
Potassium - 5.3 high
Chloride - 114 high
Carbon Dioxide - 18 low
Protein total - 4.3 Alert
Albumin - 2.2 low
A/g Ratio - 1.0 low
cholesterol - 524
Triglycerides - 324 high
HDL - 43 normal
VLDL - 65 high
LDL - 416
Microalbumin - 9252.6 high

Ever feel that there is just something they are missing? I most certainly do. Focusing on the CKD and Asthma...what if they are missing something?
going back on Lipitor, Prednisone and now adding Accosomething for my Asthma. I just don't think this is going to turn out good.

Always on the positive even when your negative

I strive to stay positive even when negative. Some days it is way harder than other days.
Especially when your nauseous and head achy. I had blood tests last month and guess what my doctor said about my GFR going down to 26?
"Oh the labs always make mistakes."
Yep that is what I deal with here in the high desert.
So, I will move on to yet another doctor.
What is awesome is that I WOKE up this morning!!
Update since 2008:

Pills - only take 2 BP meds, Lasix as needed and Reglan for nausea. I also take Omega Fish Oil, Baby aspirin and an antihistimine. The doctor now says I have adult onset Asthma. So I have an inhaler with me all the time.
I bruise all over my knees, arms and stomach very easily now. I am exhausted by 4 pm and asleep by 5:30ish. I need a nap to keep going through the day.
I have noticed simple things are being forgotten. Like how to turn my stereo in the car down, or the heater on in my apt. Sometimes I drive around an area a bit before I remember where I am turning. I'm just tired. Why can't they figure out how to get the energy levels back to us, I mean if it is only that!
Well time for sleep...going to Fright Fest tomorrow!

<3

SUPPORT us!!

for those needing help with paying for prescription drugs

take a look at this website:

http://kidney.niddk.nih.gov/kudiseases/pubs/financialhelp/

There is also:

The Partnership for Prescription Assistance provides a website that directs patients, caregivers, and doctors to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. The website features an application wizard that helps you determine which programs might be available to you.

Then this:

http://www.scbn.org/?gclid=CK2EpKb5sZQCFQ4UiQodJUaWzw

Also WALMART and COST CO (does not have it on their site but you go in and ask for it to see if your drug is covered) now have the $4 Prescription program:

http://www.walmart.com/catalog/catalog.gsp?cat=546834


Hope that helps!!!

today was good

although last night on our walk I kept getting this impending sense of doom. weird. I pushed it away and focused on the good.
today was busy with errands and picking up more little things for the house. also got some dumb videos.
looked up alot on FSGS and MCD today. Found some clinical trials. I posted them on NephSpace.
HOT today!! Stuffy nose tonight but no headache!!!

love ya, stacie

Today I am home

all day. Didn't go anywhere or use any gas!! Amazing. Then at some point today my headache kicked in. Every other week it seems I get this headache that starts in the top left of my head and goes from there to my teeth. I have such a hard time trying to figure out what it is. I do this all the time because I don't want to have any of this pain, nausea or tiredness. So I try to figure out if it is just a headache? Is it my kidneys? Did I eat something that is backing up and making me sick? If its food then I can change it. If it is my kidneys then I need to worry. Or could it be I didn't drink as much caffeine today? Or should I stop the Vitamin E?
SOoooooo many things to think...aiaiaiaiaiaiaiai!!

love, stacie